The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.

The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you.

We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and PKU-friendly businesses to make a difference in the lives of people with PKU.

Click here to learn more...>
BIOMARIN RELEASES RESULTS OF PHASE 3 TRIALS FOR NEW PKU TREATMENT
Click here to read about the study...>

NPKUA PATIENT SURVEY:
91% SAY NEW TREATMENTS ARE IMPORTANT

Click here for White Paper...>

LIFTING THE LIMITS FOR PKU
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TAKE ACTION NOW:
COVERAGE FOR MEDICAL FOODS

Click here to for the story...>

NPKUA TEEN & ADULT WEBSITE
Visit AdultswithPKU.org...>

2015 NPKUA ANNUAL REPORT
Click here for the Annual Report...>

2016 NPKUA RESEARCH FLYER
Click here for the 2016 Research Flyer...>

PKU AWARENESS DAY IS DEC. 3RD

As we gear up for PKU Awareness Day, we are excited to share with you many ways on how to get involved and support the PKU community. As PKU families and adults around the country how their support by wearing PKU Awareness gear, hold events, make a donation, post their stories on Facebook, and much more, we encourage everyone to get involved. Don't miss out, December 3rd is also the final day to post your #Pushups4PKU video for the #NutriciaMetabolics challenge where $5 is donated to the NPKUA for every video posted.

Click here for more information.

 

 

 

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