The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.

The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you.

We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and PKU-friendly businesses to make a difference in the lives of people with PKU.

Click here to learn more...>
BioMarin releases results of phase 3 trials for new PKU treatment.
Click here to read about the study...>

NPKUA PATIENT SURVEY:
91% SAY NEW TREATMENTS ARE IMPORTANT

Click here for White Paper...>

LIFTING THE LIMITS FOR PKU
Click here to learn more...>

TAKE ACTION NOW:
COVERAGE FOR MEDICAL FOODS

Click here to for the story...>

NPKUA TEEN & ADULT WEBSITE
Visit AdultswithPKU.org...>

2015 NPKUA ANNUAL REPORT
Click here for the Annual Report...>

2016 NPKUA Conference Registration

The 2016 National PKU Conference will be held July 28-31 in Indianapolis, IN. The conference promises three days of stimulating sessions, social networking, and fun!

Conference registration is now open! We are offering Early Bird pricing and discounted rates for our members. Early Bird pricing will only be good from January 4, 2016 through April 30, 2016. Beginning May 1, 2016 registration fees will increase by $100.


 

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