The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.

The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you.

We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and PKU-friendly businesses to make a difference in the lives of people with PKU.

Click here to learn more...>
BIOMARIN RELEASES RESULTS OF PHASE 3 TRIALS FOR NEW PKU TREATMENT
Click here to read about the study...>

NPKUA PATIENT SURVEY:
91% SAY NEW TREATMENTS ARE IMPORTANT

Click here for White Paper...>

LIFTING THE LIMITS FOR PKU
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TAKE ACTION NOW:
COVERAGE FOR MEDICAL FOODS

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NPKUA TEEN & ADULT WEBSITE
Visit AdultswithPKU.org...>

2015 NPKUA ANNUAL REPORT
Click here for the Annual Report...>

2016 NPKUA RESEARCH FLYER
Click here for the 2016 Research Flyer...>

2016 NPKUA Conference 

The 2016 National PKU Conference was held July 28-31 in Indianapolis, IN. The conference provided three days of stimulating sessions, social networking, and fun!

Click here to view presentations and videos.

 

 

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