Help us pass coverage legislation for TRICARE beneficiaries! Read the full action alert here for a step-by-step guide and talking points. Even if you do not have insurance coverage through TRICARE, it is critical for you to take action. Passage of legislation for TRICARE beneficiaries will help us achieve access to treatment for all! It is very important for our community to contact U.S. Representatives on the FY 2017 NDAA Conference Committee and ask them to support the medically necessary foods language in the SENATE version of the FY17 NDAA.
Build support for the Medical Nutrition Equity Act! Over the next few weeks, we need your help to find U.S. Senator Bob Casey a Republican co-sponsor for the Medical Nutrition Equity Act. Read the full action alert here to learn more about the MNEA and ask your U.S. Senators to sign-on as original co-sponsors!
Meet with members of Congress in local offices during August! Congressional members return to their home states from August 1st – September 2nd. Take this opportunity to schedule a meeting with your U.S. Representative and/or Senators to talk with them about PKU and why coverage of physician prescribed medical foods - medical formulas and modified low protein foods is so important. Let them know about the draft Medical Nutrition Equity Act (MNEA) sponsored by Senator Bob Casey and ask for their support!
Click here to find the names and contact information for your congressional members. It will list the D.C. contact information along with their website. Call the D.C. office and ask for the scheduler.
Click here for a detailed House of Representatives phone script.
Click here for a detailed Senate phone script.
Click here for an informational flyer on the MNEA. Please print and bring to your
meetings to leave with your congressional members.
Click here for an After Summary Visit Form to send to the NPKUA.