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The NPKUA currently has five committees that provide leadership to the organization. If you have any experience or interest in any of these areas, we would love to hear from you!
Advocacy This committee advocates for favorable PKU local and national legislation and insurance coverage. It also works on newborn screening issues related to PKU. Advocacy Committee Chair, Amy Oliver
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Funding/Membership This committee has two main goals. The first goal is to raise funds for the organization for research, programming, and operations. The second goal is to promote and provide a unique benefit service to our members. Jointly these goals provide annual revenue support for the organization. In addition, this committee is responsible for nominating at-large members of the Board of Directors and recruiting new members.
Funding/Membership Committee Chair, Lesley Grider
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Public Relations This committee works with professional firms on public relations. It also serves as the Launch committee, and is responsible for communication between NPKUA and state organizations. Public Relations Committee Chair, Julie Kelly
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Scientific Advisory Committee The goal of Scientific Advisory Committee (SAC) is to promote advances in the treatment and management of Phenylketonuria, with the long term goal of facilitating the development of a cure. This committee also solicits and reviews research proposals and works with researchers to pursue projects or modify existing projects to benefit those with PKU. Scientific Committee Chair, Mike Franklin
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