PKU: We Have Power – There is nothing more effective than a group of committed people who “light their candles using the torches of others…” All it takes is the right message, the right partners, with the collective goal of targeting the right people.

Jeffrey Lewis, President
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There are now multiple options for controlling blood phe and promoting optimal outcome in PKU For PKU patients and their families, the future is very bright

Dr. Barbara K. Burton
Director, PKU Clinic
Children’s Memorial Hospital, Chicago, IL
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Foods Made with Glycomacropeptide Improve the PKU Diet

Denise M. Ney, PhD, RD
Professor of Nutritional Sciences
Waisman Center
University of Wisconsin-Madison
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The use of LNAA has been shown to improve blood amino acid profiles Increase tyrosine and tryptophan blood levels and decrease brain phe levels

Kathryn Moseley
Assistant Professor of Pediatrics
Department of Pediatrics, Genetics Division
USC/Keck School of Medicine
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Transplantation of Isolated Liver Cells in the Treatment of Liver-based Metabolic Disease

Ira Fox, M.D.
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"It is my belief that everyone that has a diagnosis of PKU should be treated, no matter what age. I am amazed of the benefits that I have seen in late treated individuals."

Richard Koch, MD
University of Southern California
Keck School of Medicine
LAC+USC Medical Center
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Neurocognitive Functioning in PKU Even treated children and adults experience neuropsychological effects.

Susan Waisbren, PhD
Children’s Hospital Boston
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