The National PKU Alliance is actively working to increase coverage for PKU medical foods (formula and low protein food) at both the national and state level. Although there is a federal mandate for newborn screening at birth, there is no mandate to ensure treatment once a newborn screen comes back positive for any of the inborn errors of metabolism (including PKU). This section gives you information on coverage at the state level, our work at the federal level, insurance information and how you can help us advocate for people with PKU. Go...>

Learn how you can get involved to help
get legislation passed. Go...>

Facts and figures. Go...>

An interactive map that shows what the laws
for PKU coverage of food and formula in
each state. Go...>