PKU RESEARCH
The last five years have seen great strides in finding ways to improve treatment for phenylketonuria, or PKU. Below is a brief synopsis of work being done by leading researchers across the country to improve PKU treatment options. Go...>

SCIENTIFIC ADVISORY COMMITTEE
The Scientific Advisory Committee (SAC) is made up of individuals whose goal is to promote advances in the treatment and management of Phenylketonuria, with the long term goal of facilitating the development of a cure. Go...>

CLINICAL TRIALS
Are you interested in learning more about clinical trials that are being conducted?
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NIH has developed a new website to help people learn more about clinical trials, why they matter, and how to participate. View the Site...>

NIH PKU Scientific Review Conference

In February 2012, the PKU Scientific Review Conference sponsored by the National Institutes of Health brought together the PKU community to learn the latest findings related to the following topics: Diet Control and Management, Pharmacologic Interventions, PKU and Pregnancy, Long-Term Outcomes and Follow-up, Molecular Testing, New Technologies, and Epidemiologic Considerations. Click here to view the webcast for the NIH-PKU Scientific Conference...>

Click here to find the final working group presentations, a summary presentation with all the breakout session slide collated, the summary presentation for the European Symposium, and the summary of the future research needs posted on the conference website under the "Summary Documents" tab.