There are many resources and everyday tips in this section to help you manage PKU on a daily basis.

The NPKUA has created a comprehensive brochure for PKU adults and families on resources that includes:  medical food companies and  pharamaceutical companies; a listing of local support groups and other national organizations for PKU.  To learn more, download our PDF of PKU Resources.

More Phe, More Choices: Think Healthy! are a series of training modules for clinic or individual use, created by Laurie Bernstein, MS, RD, FADA; Sommer Myers, RD; and Casey Burn, RD at the University of Colorado Denver's Children's Hospital. For more details and ordering information, click here

2012 PKU Camps

Click here for a list of 2012 Camps that cater to PKU families. All of these camps are also listed on our website calendar of events.

Cookbooks

There are many cookbooks available full of delicious low protein recipes.  Many families find that these cookbooks are invaluable in learning how to prepare low protein food throughout many years.

For ordering information on Virginia Scheutt's cookbooks, visit www.pkunews.org.  Here, you can access information on ordering Low Protein Cookery for PKU, Apples to Zuchinni, as well as the the newly updated Low Protein Food List for PKU.

For ordering information for MACPAD's cookbooks, click on the Shopping Tab at http://www.macpad.org

For recipes on-line visit Cook for Love at http://www.cookforlove.org

To order Gina Cooks Lo Pro Cuisine cookbook, email This e-mail address is being protected from spambots. You need JavaScript enabled to view it


Teacher Information
Many families often request infomation on what to tell the school about PKU or what to tell their babysitter. There are excellent guides on both that have been developed. 

To access the Teacher's Guide to PKU, please click here.

To access the Babysitter's Guide to PKU, please click here.

College Resources
Do you have a student in college? The following list includes contact families in each state that are available to act as a local resource to your PKU child.

To access the PKU University Database, please click here.

Disney World
To access information about dining at Disney and their programs for offering PKU meals, please click here.


Grocery Stores
Many grocery stores carry gluten free and other products that may be suitable for the PKU diet. To access a list of PKU friendly food at Trader Joe's and Whole Foods, click here

Many of these documents require Adobe PDF Reader. Click here to download it if is not installed on your computer.