The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.

The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you.

We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and PKU-friendly businesses to make a difference in the lives of people with PKU.

Click here to learn more...>
PKU PATIENT REGISTRY
Click here to learn more..>

BIOMARIN RELEASES RESULTS OF PHASE 3 TRIALS FOR NEW PKU TREATMENT

Click here to read about the study...>

NPKUA PATIENT SURVEY:
91% SAY NEW TREATMENTS ARE IMPORTANT

Click here for White Paper...>

MEDICAL NUTRITION EQUITY ACT (H.R. 2587 AND S. 1194)
See how you can take action today...>

NPKUA TEEN & ADULT WEBSITE
Visit AdultswithPKU.org...>


PKU AWARENESS DAY IS DECEMBER 3RD

As we gear up for PKU Awareness Day, we are excited to share with you many of the ways on how to get involved and support the PKU community. As PKU families and adults around the country show their support by wearing PKU Awareness gear, hold events, make donations, post their stories on Facebook, and much more, we encourage everyone to get involved. Don't miss out, December 8th is the last day to post your Toast to PK-You picture on social media using hastags #Toast2PKU and #NutriciaMetabolics. Nutricia will donate $5 (up to $3000) to the NPKUA Maternal PKU Mentoring Program for every image posted. 

Click here for more PKU Awareness ideas.


 

 

 

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