The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.

The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you.

We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and PKU-friendly businesses to make a difference in the lives of people with PKU.

Click here to learn more...>
PKU PATIENT REGISTRY
Click here to learn more..>

BIOMARIN RELEASES RESULTS OF PHASE 3 TRIALS FOR NEW PKU TREATMENT

Click here to read about the study...>

NPKUA PATIENT SURVEY:
91% SAY NEW TREATMENTS ARE IMPORTANT

Click here for White Paper...>

NPKUA TEEN & ADULT WEBSITE
Visit AdultswithPKU.org...>


MEDICAL NUTRITION EQUITY ACT (H.R. 2587 AND S. 1194)

We are excited to announce that the Medical Nutrition Equity Act (H.R. 2587 and S. 1194) has been introduced in Congress! The MNEA is bipartisan legislation sponsored by Senator Bob Casey (D-PA) and Senator Chuck Grassley (R-IA) in the Senate; and Representative John Delaney (D-MD) and Representative Jamie Herrera Beutler (R-WA) in the House. We are so grateful for their support and leadership! 

What do we do next? We need your help to find U.S. Senators and House Members to rally around the legislation and agree to co-sponsor!

Click here to see how you can take action today!


 

 

 

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