FLETCHER BAY FOUNDATION CHALLENGE

 

The PKU community is being heard like never before. Researchers, the pharmaceutical industry, and even the federal government are listening to the PKU community and it’s making an enormous difference.

Thanks to a $25,000 matching challenge grant from the Fletcher Bay Foundation, NPKUA is going to turn up the volume even more. Your gift made to NPKUA before December 15 will be matched dollar for dollar for a total of $25,000. Please make your gift today to help us realize this important opportunity.

Here’s an example of how your annual support to NPKUA helps us to advance the conversation: One of the most significant gaps in the development of new treatments and a cure is the lack of agreement by regulators on what to measure to determine the meaningful reduction in Phe levels in adults. In 2018 NPKUA brought together drug developers, PKU geneticists, neuropsychologists, FDA officials and NIH professionals to address this challenge. Resolving this question will give stakeholders a common endpoint which could increase collaboration to improve the lives of people with PKU.

As the recognized leader in PKU, NPKUA has the credibility to organize these important stakeholders. Our grass-roots efforts have taken hold, but we need your support to maintain momentum. Your gift will help NPKUA to drive the PKU agenda including research and advocacy efforts in North America and around the world.

Please be as generous as you can because your gift to NPKUA made by December 15 will be eligible for the Fletcher Bay Foundation challenge.

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