2016 NPKUA CONFERENCE GENERAL SESSIONS

2016 NPKUA Conference Breakout Sessions
2016 NPKUA Conference Scientific Poster Session

Friday, July 29, 2016


Welcome and NPKUA Update
Amy Oliver, JD and Christine S. Brown
Amy Oliver, NPKUA President and Christine S. Brown, NPKUA Executive Director welcome attendees to the 2016 National PKU Alliance Conference in Indianapolis, IN
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Opening Keynote: Why Advocacy Matters, How You Can Make an Impact, Where you Can Insert Yourself, and What You Can Do to Make a Change
Cheryl A. Davis, Director of Oncology Advocacy and Professional Relations at Eli Lilly
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Changing PKU Starts with You
Rhonda Connolly, Dr. Olaf Bodamer and Christine S. Brown
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Lifting the Limits for PKU
Alison Reynolds, Michelle Pernsteiner and Heather Bomar
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The Development of a PKU Swine Model and Uses for Transplantation and Other Therapeutic Approaches
Robert D. Nicholls, D. Phil, Children's Hospital of Pittsburg of UPMC
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Isolation of Human Aminon Epithelial (hAE) Cells According to Good Manufacturing Procedures
Dr. Roberto Gramignoli, Karolinska Instututet, Stockholm, Sweeden
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A Genetically Modified Probiotic for the Treatment of Phenylketonuria
Dr. Katherine Durrer-Deming, University of North Texas Health Science Center
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Saturday, July 30, 2016

 

 

Report of Scientific Advisory Board - Research Advancements
Dr. Cary Harding, NPKUA Scientific Advisory Board Chair
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Genetically Engineered Probiotics
Mark Tewey, Trayer Biotherapeutics
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Gene Therapy for PKU
Dr. Cary Harding, Oregon Health and Sciences University
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Home Phe Monitor Development Challenge
Dr. Tom Franklin
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Sunday, July 31, 2016 

Liberalization of the Dietary Restrictions for PKU Patients: LNAA Supplementation in PKU Mice
Dr. Eddy van der Zee University of Groningen, The Netherlands
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New Insights into PKU and the Brain
Shawn Christ, PhD, University of Missouri
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PKU Panel: Q & A with PKU Adults and Professionals
Les Clark, Olivia Cummings, Dr. Cary Harding, Christine S. Brown and Dr. Rani Singh
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