The National PKU Alliance concluded our 5th biennial conference on July 8, 2018 in Atlanta, GA. This was the largest PKU conference in the world! We had 665 people in attendance from 8 countries and 35 states. To date over 1,600 different attendees have joined us for one of our conferences across the United States. 

Click here to view general session presentations.

Click here to view breakout session presentations.

Click here to view scientific posters.

We hope that you will join us July 9-12, 2020 at the Hilton in Vancouver, WA (Portland, OR area) for our next amazing conference for PKU!


Breakout Session Topics

  • Advocating for PKU
  • Caring for yourself as a Caregiver
  • Fundraising
  • Grandparent Topic
  • Healthy Meal Planning and also for a Mixed Family
  • Life Coaching to motivate children
  • Maternal PKU
  • Meal Planning with Schools
  • Newborns and Toddlers
  • Overcoming Obstacles – Sports & Beyond
  • Peer Pressure (Explaining PKU to friends, eating out)
  • PKU and Neurocognitive Development 
  • Research Topics
  • Resources and Strategies for an Easy and Tasty PKU diet: How Much Phe and Cook for Love.
  • Returning to Diet on a Budget
  • School aged kids – Self-care/ Self-Management Skills
  • Siblings – non PKU children helping siblings with PKU
  • Strategies to Shake Off Diet Related Anxiety
  • Transition to College and Adult Life
  • Weight Control and Exercise
  • Why Local PKU Orgs are important – we need you!  

Returning Favorites

  • Entertainment
  • Grocery Store Tour - Virtual this year!
  • Kids Zone
  • PKU Adult and Teen Dinner
  • PKU Hero Award Banquet
  • Research Topics
  • Teen Lounge