MEDICAL NUTRITION EQUITY ACT 

The National PKU Alliance has been working since 2009 to help pass federal legislation to address coverage of formula and low protein modified foods. Passage of the MEDICAL NUTRITION EQUITY ACT (H.R. 2587 and S. 1194) would require all private and public insurance plans to cover formula and low protein modified foods for CHILDREN AND ADULTS with PKU. This bill also requires coverage of medically necessary foods for other Inborn Errors of Metabolism and certain digestive disorders. The MEDICAL NUTRITION EQUITY ACT (H.R. 2587 and S. 1194) is a collaborative effort between the NPKUA, American Academy of Pediatrics (AAP), North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN), and the office of U.S. Senator Robert Casey.

Click here for an informational flyer on the MNEA.

Bill Information

Similar legislation (formerly the Medical Foods Equity Act) has been introduced in three prior Congressional Sessions. A new session started at the beginning of 2017. On May 22, 2017, the MEDICAL NUTRITION EQUITY ACT H.R. 2587 and S. 1194 was introduced in Congress! The MNEA is bipartisan legislation sponsored by Senator Bob Casey (D-PA) and Senator Chuck Grassley (R-IA) in the Senate; and Representative John Delaney (D-MD) and Representative Jamie Herrera Beutler (R-WA) in the House. We are so grateful for their support and leadership! 

What do we have to do next? We need your help to find U.S. Senators and House Members to rally around the legislation and agree to co-sponsor!

HOW WOULD THE Medical NUTRITION Equity Act HELP INDIVIDUALS WITH PKU?

  • Require all private insurance plans (state regulated or self-insured/self-funded) and federal health programs, including Children's Health Insurance Program, Tricare, Medicaid, Medicare, and Federal Employee Health Benefit Plans to provide coverage for FORMULA and LOW PROTEIN MODIFIED FOODS for all CHILDREN and ADULTS with PKU.
  • Medically Necessary Foods for PKU are not addressed by the Affordable Care Act.

 

Advocacy News!

We are excited to announce that the Medical Nutrition Equity Act (H.R. 2587 and S. 1194) has been introduced in Congress! The MNEA is bipartisan legislation sponsored by Senator Bob Casey (D-PA) and Senator Chuck Grassley (R-IA) in the Senate; and Representative John Delaney (D-MD) and Representative Jamie Herrera Beutler (R-WA) in the House. We are so grateful for their support and leadership! 

House and Senate passes Fiscal Year 2017 National Defense Authorization Act expanding TRICARE coverage of medical foods for PKU! Thank you to everyone who helped with this important advocacy effort.  We look forward to building on this success to achieve access to treatment for all!

Take action TODAY!

Now that the MNEA has been introduced we must ask Members of Congress to co-sponsor the bill.  The MNEA would require ALL insurance plans to cover medical foods – formula and low protein modified foods for PKU regardless of age. Please help fix PKU treatment coverage by asking your two U.S. Senators and Representative in the House to join as a co-sponsor of  H.R. 2587 and S. 1194, the Medical Nutrition Equity Act.  

How do I look up my legislators? Click here to find the names and contact information for your congressional members.  It will list the D.C. contact information along with their website. To schedule a DC or local in-district meeting, call the D.C. office and ask for the scheduler.  To discuss PKU and medical foods coverage over the phone, ask to speak with the health legislative assistant (HLA).

How do I ask my two Senators and Representative in the House to co-sponsor the bill?

 Additional RESOURCES and Information

General Tips On How To Contact Congress

ACMG Efforts Lead to AMA’s Support of Health Coverage for Medical Food Products

Press Release: Grassley is Original Co-sponsor of Medical Nutrition Equity Act

MNEA - Senate Bill: S.1194 Medical Nutrition Equity Act of 2017

MNEA - House Bill: H.R. 2587 Medial Nutrition Equity Act of 2017

 

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