The National PKU Alliance has been working since 2009 to help pass federal legislation to address coverage of formula and low protein modified foods.

On May 22, 2017, the MEDICAL NUTRITION EQUITY ACT (S. 1194 and H.R. 2587) was introduced in Congress! The MNEA is bipartisan legislation sponsored by Senator Bob Casey (D-PA) and Senator Chuck Grassley (R-IA) in the Senate; and Representative John Delaney (D-MD) and Representative Jamie Herrera Beutler (R-WA) in the House. We are so grateful for their support and leadership! 

Click here for an informational flyer on the MNEA.


The MNEA would require all private insurance plans (state regulated or self-insured/self-funded) and federal health programs, including Children's Health Insurance Program, Tricare, Medicaid, Medicare, and Federal Employee Health Benefit Plans to provide coverage for FORMULA and LOW PROTEIN MODIFIED FOODS for all CHILDREN and ADULTS with PKU.



NPKUA Medical Nutrition Equity Act Overview
Press Release: Grassley is Original Co-sponsor of Medical Nutrition Equity Act
MNEA - Senate Bill: S.1194 Medical Nutrition Equity Act of 2017
MNEA - House Bill: H.R. 2587 Medical Nutrition Equity Act of 2017

Coverage news!

MNEA bill language was included in the National Defense Authorization Act for Fiscal Year 2017 (NDAA-17), which means TRICARE now covers formula, low protein modified foods, and prescribed vitamins for PKU, other inborn errors and certain digestive disorders! 

Updated TRICARE Policy for Coverage of Medically Necessary Foods (effective December 23, 2017)

If you have TRICARE and have any trouble with coverage of formula or low protein modified foods, please share this policy document with your benefits contact.

Advocacy Tip - Share this news with congressional offices and let them know MNEA language in the NDAA-17 had strong bipartisan support!


Save the Date

Join the NPKUA and Patient & Providers for Medical Nutrition Equity (PPMNE) on Capitol Hill May 6-7, 2019 to lobby for the Medical Nutrition Equity Act. (Scholarship Available) Contact Katrina Swenson, Project and Communications Coordinator at


The MNEA needs more co-sponsors! Send an email to your Members of Congress in minutes at

Please share this link with family and friends!

View the MNEA video to share with members of Congress here.

Share your Medical Nutrition Story at

Read our current Action Alert for the MNEA!

Help Patients & Providers for Medical Nutrition Equity follow-up with congressional offices! Find out how here.

Ask members of Congress to co-sponsor the Medical Nutrition Equity Act:
Patient & Providers for Medical Nutrition Equity Fact Sheet
Why IEM Medical Nutrition Coverage Saves Costs
Please Co-Sponsor Letter

Tips FoR Contacting Members of Congress

Click here to look up your House Representative and two Senators. Click here for Talking Points to help you.

To schedule a D.C. or local in-district meeting, call the D.C. office and ask for the scheduler.  In-district meetings with legislators and/or their staff are VERY effective!

To discuss PKU and medical nutrition coverage over the phone, call the D.C. office and ask to speak with the health legislative assistant (HLA) – If the HLA is not available, ask for their email address. Communicating and building relationships with staff is key!

To send a letter, visit the legislator’s website to find their online contact form, mailing address, or fax number. Click here for an easy to customize letter template. 

To make an impact on Facebook, Twitter and Instagram, check out our Social Media Guide.

Additional Tips - How to effectively talk to your member of Congress by Emily Ellsworth

Print or save these documents to share with legislators and staff: