Whether your loved one is starting kindergarten, returning to the classroom or preparing for college, NPKUA has resources to help students, families and loved ones feel informed and prepared for the year ahead.
Visit NPKUA’s School-Age Resources page for helpful tools and information designed to support students with PKU and their loved ones. Resources include an informative PKU binder, guidance for communicating with teachers, school nurses and other staff, information about Section 504 plans and additional tools to help families navigate PKU at school.
PKUniversity Webinars
Our PKUniversity webinar library includes conversations specifically focused on navigating school and college with PKU. These recorded webinars are available to watch anytime on YouTube:
Back to School with PKU: Understanding 504 Plans and Student Support
Learn more about Section 504 plans and the types of accommodations and support that may be available to help students with PKU succeed at school.
Navigating College with PKU: Strategies for a Successful Transition
Preparing for college can bring new responsibilities and changes in how PKU is managed. This webinar explores strategies to help students prepare for the transition and navigate PKU more independently.
Kindergarten Kits
Starting kindergarten is an exciting milestone, and NPKUA’s Kindergarten Kits* are designed to help make the transition a little easier. Kits are available to request at no cost and include fun items for your child, a storybook for peer education, helpful tools and PKU resources to support students and their families as they begin their educational journey.
*NPKUA Kindergarten Kits are available for children currently in or entering kindergarten during the 2026-2027 school year. Please allow up to three weeks for your kit to arrive.
No matter what grade or stage you are navigating, a little preparation can go a long way! We hope these resources help make the transition back to school easier and give students with PKU and their families the tools and support they need for a successful school year.
Are you starting a new school year or reaching a new educational milestone? Update your “Education” survey in the PKU Patient Registry today! Visit pku.iamrare.org to learn more.