We invite our community to nominate candidates for the PKU Hero Award, which will be presented at the 2026 NPKUA Community Conference, held July 16–19, 2026, in Lombard, IL. The PKU Hero Award recognizes individuals...
Read MoreNPKUA’s sixth annual Scientific Conference took place February 26–28, 2026, in New Orleans, LA, bringing together leaders from across the PKU community. More than 100 invited healthcare providers, researchers, industry partners and regulatory representatives gathered...
Read MoreMeet this month’s community spotlight, Elinor! Elinor is a 15-year-old who was diagnosed with PKU at birth and began Kuvan therapy at just seven months old. “Living with PKU makes my daily routine look different...
Read MoreMeet Suzanne, a longtime mentor with the NPKUA Mentor Program! Suzanne’s family’s journey with PKU was initially shaped by her older brother, who was diagnosed late and, as a result, suffered brain damage. Because of...
Read MoreShare how PKU affects your quality of life through the PKU Patient Registry. Living with PKU impacts daily life, and your experience deserves to be heard. Complete quality-of-life surveys in the PKU Patient Registry by...
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