Category Archives: Press Release

National PKU Alliance Acquires BioPKU.org Database to Advance PKU Research

FOR IMMEDIATE RELEASEROANOKE, Va., — National PKU Alliance (NPKUA) announced today that it has acquired the BioPKU database, a widely used scientific resource containing anonymized genetic information from individuals with phenylketonuria (PKU). Originally developed by...

TruePKU Initiative Provides Global PKU Community an Opportunity to Share What It’s Like to Live with PKU

People affected by phenylketonuria (PKU) unite to describe challenges of managing PKU and aspirations for the future of PKU treatment Washington, DC – December 5, 2024 – The National PKU Alliance (NPKUA), in collaboration with...