An Inside Look at Your Conference Experience

NPKUA’s Living Our Best PKU Life Community Conference
The Westin Chicago Lombard • July 16–19, 2026

Don’t Miss Out!

We’re so excited to invite you to the 2026 Living Our Best PKU Life Community Conference in Lombard, IL, from July 16-19, 2026. Curious what your conference weekend might look like? Here’s a preview of what’s in store at NPKUA’s largest PKU gathering in the country.

Kick off our first night in Chicagoland with a welcome reception and buffet dinner, followed by recognition of our 2026 PKU Hero Awardee. Nominate your PKU Hero by May 1

We are thrilled to announce our conference keynote speaker, Patricia Guthrie, daughter of Dr. Robert Guthrie, the microbiologist who developed the newborn screening test for PKU.

Plan for a FULL weekend of engaging and informative sessions, including:

This is just a small preview of all that’s ahead! Explore our agenda overview on our conference website.

Make new friends and build your community at our Friday night Pheast dinners. Individuals with PKU are invited to attend, with separate locations planned for teens and adults.

The fun doesn’t stop in the Kids and Teen Zones! Each zone will feature age-appropriate activities, including educational sessions, games, crafts, music and a hands-on pizza-making demo with Chef Neil and Vitaflo. Teens can also join general sessions and head out on an off-site field trip. New this year, a baby and toddler zone with a napping room makes it easy for even the youngest attendees to be part of the weekend.

Don’t forget to pack your dancing shoes for a celebratory dinner and dance party on our final night. Enjoy a DJ, a 360-video booth and plenty of fun on the dance floor. You might even find yourself in a conga line!

Visit our conference website for an agenda overview, FAQs and more. Have questions? Contact conference@npkua.org.