Community Call, Caregivers of Teens with PKU Ages 13-17
Join us for this month’s community calls to share stories, build connections and discuss topics important to you! To register for a session, please email sarah@npkua.org.
Join us for this month’s community calls to share stories, build connections and discuss topics important to you! To register for a session, please email sarah@npkua.org.
Join NPKUA for our March PKUniversity webinar, Advocacy in Action, an engaging webinar exploring the many ways advocacy strengthens and supports our PKU community! In this session, you’ll hear aboutContinue reading "PKUniversity Webinar: Advocacy in Action"
Join us for this month’s community calls to share stories, build connections and discuss topics important to you! To register for a session, please email sarah@npkua.org.
Join us for this month’s community calls to share stories, build connections and discuss topics important to you! To register for a session, please email sarah@npkua.org.
Join us for this month’s community calls to share stories, build connections and discuss topics important to you! To register for a session, please email sarah@npkua.org.
Join us for this month’s community calls to share stories, build connections and discuss topics important to you! To register for a session, please email sarah@npkua.org.
Join us for this month’s community calls to share stories, build connections and discuss topics important to you! To register for a session, please email sarah@npkua.org.
Join us for an informative and practical webinar all about summer camp options for children and teens with PKU. Led by the experienced team at Camp PHEver, this session will explore both PKU-specific camps—designed to provide a safe, supportive environment with trained staff and appropriate dietary management—and strategies for successfully navigating traditional summer camp experiences.Continue reading "April PKUniversity Webinar | Friendship, Fun and PKU: Inside the PKU Camp Experience"
Join us for this month’s community calls to share stories, build connections and discuss topics important to you! To register for a session, please email sarah@npkua.org.
Join us for this month’s community calls to share stories, build connections and discuss topics important to you! To register for a session, please email sarah@npkua.org.
NPKUA and BioMarin welcome caregivers and their teens living with PKU to join an informational webinar to hear more about the recent approval of PALYNZIQ® (pegvaliase-pqpz) for teens ages 12-17.Continue reading "May PKUniversity Webinar | PALYNZIQ and Teens with BioMarin"
Join us for this month’s community calls to share stories, build connections and discuss topics important to you! To register for a session, please email sarah@npkua.org.