Interested in participating in PKU research to help move progress forward? NPKUA offers several ways to stay informed and get involved:
Join the PKU Patient Registry
When you create a profile in the Registry, you can choose to receive information about external research studies, such as clinical trials, surveys, and other research projects for which you may be eligible. To date, the Registry has connected the PKU community with nearly 50 external research studies. Join the Registry today to help us better understand PKU and learn about opportunities to participate in research!
Become a PKU Ambassador
External partners often want input from the PKU community to inform educational materials, programs, products, or other initiatives. These market research and feedback opportunities are shared with PKU Ambassadors, who can choose whether to participate. Learn more and sign up to be a PKU Ambassador!