Share how PKU affects your quality of life through the PKU Patient Registry.
Living with PKU impacts daily life, and your experience deserves to be heard. Complete quality-of-life surveys in the PKU Patient Registry by April 1 to contribute to research being shared at a major international scientific conference later this spring. Help bring the lived experience of PKU to the global research community! Visit pku.iamrare.org to participate.
To learn more about the Registry, click here or contact registry@npkua.org.