University of Vermont Health

Published September 19, 2025

Baby
School Age
Young Adult
Adult
Siblings & Caregivers

About NPKUA
Mission & History
Directors & Staff
Financials & Impact Reports
News & Blog
Contact Us

About PKU
Treatment Options
TruePKU

Events
Move Your Pheet
Community Conference
Lifting the Limits Philly
Lifting the Limits North Carolina
PKU Awareness Day
Calendar

Ways to Give
Ways to Give
Donate
Volunteer
DIY Fundraising

Patient Registry
Genetic Testing

Research
Research Grants
Scientific Advisory Board
Clinical Trials
Recruiting PKU Studies

Community Programs
Community Calls
Mentor Program
Affiliates
Kits & Guides
Patient Registry
Advocacy
Genetic Testing
Pregnancy
Insurance Support Program

Resources
Insurance Coverage
Cooking & Food
Find a Clinic

Join Our Mailing List
Careers
Terms of use
Privacy

The NPKUA is an independent organization, and a registered 501(c)3
EIN: 26-2849140

2014 Electric Road, #212
Roanoke, VA 24018
Phone: 855.675.8211
Email: info@npkua.org

The information included here is for general informational purposes only. No material on this site is intended to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding your medical care. The NPKUA has made every attempt to ensure accuracy of the information provided here, but cannot guarantee the validity of the information, and does not endorse any product or service offered.