Meet Suzanne, a longtime mentor with the NPKUA Mentor Program!
Suzanne’s family’s journey with PKU was initially shaped by her older brother, who was diagnosed late and, as a result, suffered brain damage. Because of this experience, Suzanne was diagnosed with PKU at birth, before newborn screening was routinely available.
Growing up with PKU gave Suzanne a deep appreciation for the importance of diet and early diagnosis in managing the condition. Over the years, she has been incredibly thankful for the many resources, new therapies and supportive networks that have emerged for those living with PKU.
“These advancements have not only improved quality of life but also fostered a strong sense of belonging within the PKU community,” Suzanne shared.
Suzanne has proudly served as a NPKUA mentor since the inception of the program in 2020. “This role has been deeply rewarding, allowing me to connect with others affected by PKU, offer guidance and provide encouragement as they navigate their own paths. I believe that connections — through shared experiences, compassion and understanding — are vital to living well with PKU and to building a stronger community.”
Suzanne spent her career in education as a special education teacher and administrator. Now retired, she enjoys staying active and engaged through her favorite hobbies, including playing tennis, traveling to new places and reading. She shared that each of these pursuits keeps her curious, connected and grateful for the opportunities that continue to enrich her life.
Learn more about connecting with Suzanne or another NPKUA mentor by visiting npkua.org/support/mentor or emailing sarah@npkua.org. NPKUA’s Mentor Program provides hope, understanding, resources, guidance, motivation and emotional support to individuals affected by PKU, including adults with PKU, their families and caregivers of children with PKU.