Caring for a child with PKU is crucial to their long-term success. The work you put in now to help them with their diet, educate them about managing PKU for the long-term and ensuring they are getting the nutrients they need will help them grow into adults who are better equipped to manage PKU.

But all you put in to take care of them leaves little time for you to care of yourself. The mental and physical toll of caretaking means caring for the caregiver is incredibly important.

Here are some helpful resources:

• The NPKUA Event Calendar includes national and regional events where caregivers can meet other families living with PKU. Events
• Our Mentor program provides the opportunity to connect with other caregivers
• Tips and suggestions from CaringBridge can help you avoid and recover from caregiver burnout
• The National Organization for Rare Disorders (NORD) caregiver resource offers educational and financial resources to support your efforts
• Give an Hour’s mental health resources page for caregivers so you don’t have to go it alone.