Other helpful resources
BioMarin RareConnections™ is committed to the PKU community. Your experienced BioMarin RareConnections team will help guide you around barriers to treatment, financial hurdles, and life changes that may come between you and the care you need.
877-695-8826
Ajinomoto Cambrooke is the leading innovator in complete dietary therapy for PKU. Founded by two PKU parents, Cambrooke offers the first PKU formula based on an intact natural peptide. Cambrooke produces the most extensive range of low-protein foods and formulas for the complete PKU diet.
866-456-9776
Nutricia is a global health company that leads the development and use of advanced medical nutrition for specialized care. Nutricia is dedicated to providing quality formulas and medical foods for the treatment of rare genetic and metabolic disorders.
United States: 800-605-0410, Canada: 877-636-2283
Vitaflo® has developed a new generation of innovative medical foods for conditions such as PKU. These foods not only meet nutritional needs, but also appeal to people who take them on a daily basis.
Order Line: 888-VITAFLO (848-2356), Direct Line: 571-447-5200
PKU Perspectives offers a Direct Insurance Billing program to help you with your medical food reimbursement. Call them at 866-758-3663 to talk to a representative. They will help you navigate insurance challenges.
Direct Line: 866-758-3663
Owned by a Registered Dietitian with a deep rooted history of importing and selling enteral formula across the United States, ZOIA Pharma is relentless in making sure families receive formula that is prescribed by their healthcare professional. They do not subscribe to a one-size-fits all model and work with all manufactures across a wide range of illness
NORD provides assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
Use the links below to apply for each of their assistance programs:
PKU Emergency Relief
PKU Medical Assistance
PKU Premium Copay Assistance
Visit the NPKUA YouTube Channel