• Online: Make a donation securely here on our website
• Mail: Send your donation to NPKUA, 2014 Electric Road #212, Roanoke, VA 24018
• Phone: Donate by calling 855.675.8211 ext. 4

As a monthly donor, you can help guarantee steady, year-round support for NPKUA. Donate online with a credit card and choose “monthly” to make a sustaining gift to be charged automatically each month.

You may make changes to or suspend your gift at any time by contacting Susie Gray at [email protected].

Honor a loved one’s PKU journey with a tribute gift. When making your donation, check the optional box “Dedicate this Gift” and include the honoree’s or their family’s contact information. We can notify them of your gift, if you wish.

The Asbjørn Følling Society recognizes individuals and families who demonstrate exceptional commitment to the PKU community through annual leadership giving to NPKUA.

Membership is extended to supporters who contribute $1,000 or more to NPKUA’s Annual Fund each year, helping fuel critical research, advocacy, education and community support. Gifts may be made as a single contribution or through cumulative giving over the calendar year.

Named in honor of Asbjørn Følling, the physician who first identified PKU, NPKUA celebrates those whose generosity drives progress and strengthens the future for individuals and families affected by PKU.

Benefits:

• Special NPKUA lapel pin
• Email updates on the impact of your generosity
• Invitation to VIP reception at biennial NPKUA Community Conference
• Special recognition at NPKUA Community Conference
• Print copy of NPKUA Annual Report

Many companies will double, or even triple, charitable contributions made by their employees. Some companies will even match gifts made by retirees and/or spouses. Type your employer’s name in the search field below to begin.

If your company is eligible, you may need to complete the matching gift process via your company’s online portal or request a matching gift form from your employer and send it with your gift. Send your completed matching gift forms or agency online verification request to:

National PKU Alliance
2014 Electric Road, #212
Roanoke, VA 24018

For more information about donations, please contact Susie Gray at [email protected]

Matching Gift and Volunteer Grant information provided by

You can easily recommend a grant to NPKUA through your donor-advised fund. Contact your fund manager or financial institution to recommend a gift to National PKU Alliance (Tax ID: 26-2849140) and receive an immediate tax deduction.

Let us know of your gift by emailing [email protected] so we can thank you for your generous support!

Leave a Lasting Legacy for the PKU Community

By including NPKUA in your will or living trust, you can make a lasting impact on PKU research, care and community support — while continuing to put your loved ones first.

One of the simplest ways to do this is through a Charitable Bequest.

Why a Charitable Bequest?

• Simple – Just a few sentences in your will or trust
• Flexible – You can change your plans at any time
• Versatile – Leave a specific amount, a percentage of your estate, or other assets
• Tax-Smart – Your estate may qualify for a charitable tax deduction

Sample Bequest Language

“I give to the National PKU Alliance (NPKUA), a nonprofit organization with Tax ID 26-2849140, [written amount or percentage of the estate], income and principal to be applied in its discretion for its general uses and purposes.”

If you would like to restrict your gift to a particular purpose, please contact Catherine Warren, Executive Director of NPKUA, to discuss appropriate language.

Restricted gifts should include the following sentence: “If at any time it becomes impractical to apply this gift as I have directed, NPKUA shall have the discretion to apply this gift to other needs identified by NPKUA which conform as closely as possible to my intent.”

Putting Your Family First

Many supporters choose to leave a percentage of their estate, allowing their gift to remain proportional as circumstances change and ensuring loved ones are cared for first.

We’re Here to Help

If you have questions about naming NPKUA in your will or living trust, we’re happy to help.

Catherine Warren
Executive Director, National PKU Alliance
[email protected]
855.675.8211 ext. 6

You are not required to notify NPKUA of your plans, though we welcome the opportunity to thank you. Any information you share will be kept confidential.

Thank you for your interest in donating stock to NPKUA. Electronic delivery of stock shares is the most secure and expedient delivery process available and provides efficient internal control as well as cost savings. To help you facilitate a gift of stock, please use the following instructions:

Instructions for Donating Stock (Securities) to NPKUA

1. Contact your broker with your donation intentions. Have them transfer the securities to:

• Account name: National PKU Alliance
• NPKUA Tax ID: 26-2849140
• Receiving institution: Pershing LLC
• DTC Number: 0443
• Account number: Q28137083

2. Please notify our office by emailing [email protected]. Kindly provide the following information so we can identify your gift:

• A description of the securities to be donated
• The number of shares
• Your name, address, email, and phone number

3. Contributions will be recorded at the fair value of the stock on the date received.

If you are at least 70 ½ years old, consider a qualified charitable distribution (QCD) from your IRA or employee retirement plan to support the PKU community. A gift of your retirement assets puts your funding to use today while recognizing tax benefits. Initiate a donation from your retirement account with National PKU Alliance’s Tax ID #26-2849140. 

Vehicle donations have the potential to bring in hundreds and sometimes even thousands of dollars in support of our programs. Donating is easy, the pick-up is free and your donation is tax-deductible! Donate unwanted cars, trucks, motorcycles, boats, RVs or campers by calling 855.500.7433 or visiting https://careasy.org/national-pku-alliance 

Creating an online, DIY (Do It Yourself) fundraiser is an easy and effective way to raise money for NPKUA. Whether it’s a birthday fundraiser, a run or a community event, you can rally your community to support NPKUA research and programs.

It’s easy to set up and individualize your page and watch as your personal thermometer goes higher and higher! Click here and select “Start a Campaign” to get started fundraising for NPKUA.